Data Sharing Technology & Policy
This blog focuses on the importance of sharing scientific research data, highlighting strategies, best practices, and expert insights.
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Latest Features in DUOS
Announcing ‘Progress Reports’ in DUOS! Renew Access & Share Your Research Faster
DUOS streamlines the process of sharing and requesting data, and is now expanding institutions’ and researchers’ ability to renew their access to datasets, and share their research with the scientific community! Why ‘Progress Reports’? When using controlled-access data, access is typically granted for one year by a data access committee (DAC). To help researchers extend…
Filter data by Data Use & Access terms, DACs, and Data Types
Finding the right dataset just got easier in DUOS! We’ve added powerful new search filters that help you quickly narrow down datasets by the criteria that matter most. You can now filter data by: These filters make it faster to discover the right data, streamline your access workflows, and ensure you’re working with datasets that meet your…
Create Your Own Branded & Curated Data Library in DUOS!
We’re excited to announce a powerful new feature in DUOS: the ability to create your own branded and curated Data Library! Now, organizations and research groups can showcase their datasets with a customized look and feel—tailored to reflect their unique identity and mission. With this feature, you can: Whether you’re amplifying your research impact or…
Publications & Policy Briefs
GA4GH Data Passports: Proposing a New Technical Specification for Data Policy Representation
We’re excited to share a new paper by Jonathan Lawson and Tom Conner, “GA4GH Data Passports: Proposing a New Technical Specification for Data Policy Representation,” now available on SSRN. This work introduces a proposed technical specification for Data Passports, a framework designed to streamline data use while upholding ethical provenance. By encoding these metadata as…
Solving the Catch-22 in searching for controlled access data
In his latest paper, Jonathan Lawson of the Broad Institute introduces View-Only Data Access Requests (VODAR), a novel approach designed to enhance the discoverability of controlled-access datasets. VODAR enables researchers to explore sensitive data in depth without compromising compliance or participant consent, addressing a significant barrier in genomic and biomedical research. This framework aims to…
Are you compliant with NIH’s updated Genomic Data Sharing policy?
On July 25, 2024, the National Institutes of Health (NIH) issued updated guidance to the Genomic Data Sharing Policy stating that researchers approved for controlled-access NIH data, via mechanisms like dbGaP or DUOS, must store and analyze this data on systems that are NIST SP 800-171 compliant (or the equivalent ISO/IEC 27001/27002) starting January 25, 2025. If you are using Terra…
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